In reply to myrddinmuse:
I have had in both hands for about 15 years. Currently 38. Seems to have stabilised over the last 5 years. Still have full mobility your hands. Lumps on palm below index finger on left hand and ring and pinky on fight hand.
Came on around the time I took a supplement (can't actually remember what it was), and probably not connected, but did come across something linking the two on the internet (search and ye will find!).
Anyway I found massage made it worse.
I used to get symptoms only at night, when I would wake up with hands in spasm (I.e. fists that would not open!) This would normally be after fierce convert climbing sessions.
Sounds bad, and was pretty scary when first happened. But very rare now. Seems to happen after a night on the booze, again could be coincidental, and I hardly drink anyway.
But I rarely think about it now. Certainly not stopped me climbing. Still bouldering hard, up to 4 sessions a week and few symptoms.
Basically it is not too bad. Loads of people have it. Only a few extreme cases appear in Google searches. I reckon these are very rare.
I looked at operation stuff, about 10 years ago, but definitely glad I didn't bother. I expected a much worse progression of the symptoms.
Post edited at 21:00