We hope that future studies may help us to find out what makes some people susceptible to HAPE and HACE. By better understanding what causes these diseases, we hope that we will be able to find new treatments. Previous HAPE or HACE sufferers who join the registry will be invited to join research studies that may involve questionnaires, mouth swabs or simple blood tests. Because these illnesses are thankfully rare, there are not many people in the UK who are eligible to join, so we really need to hear from as many sufferers as possible.