In reply to Removed Usersimonridout:
Being difficult to treat does not make it impossible to manage. I was misdiagnosed for 3 years despite numerous GP visits for a clear bulls-eye rash, a symptom which is diagnostic for Lyme Disease. I was then treated for 3 years by Edinburgh Western General before they told me in 2010 that they could do no more for me and discharged me. I was still very ill and thought I was being sent home to die. My GP asked them to reconsider but they refused, quoting the guidelines of the Infectious Disease Society of America (IDSA) which state thst 2-4 weeks of antibiotics are all that is needed to eradicate the infection. I asked for a second opinion in Glasgow but my request was refused. Because 2 consultants refused to help, so did my GP. Being left without any NHS help at all, I found private help. They have treated me for 7 years and helped me gain significant improvement in my quality of life. I have gone from being unable to walk more than 100 yards, to being able to enjoy several mile walks again. Lyme Disease should not be misdiagnosed when there is a clear diagnostic symptom, and just because an illness is difficult to cure, does not give a mandate for abandoning patients. Continued use of the outdated IDSA guidelines is failing patients. I want everyone to experience the improved quality of life that I have been able to achieve through private treatment which recognises the persistence of infection after antibiotic treatment. The petition also asks for more to be done to raise public awareness so that tick bites can be avoided in the first place.